In medical care, bad information can be deadly. All too often,
patients fail to provide doctors or hospitals with a complete
health history, including current medications and allergies. In
other cases, health care providers lose or don't convey this
information to the professionals on the spot in a timely manner.
In nearly every other sector of the economy, systems to convey
critical information are electronic. But medical records are
generally written and stored on paper, making errors more
common and transfers of information cumbersome. The problem
is that many patients and providers alike are reluctant to "go
electronic" with medical records, because this information is so
inherently personal and private. The question is one of simple
trust: other than one's own doctor, who can be trusted to
transfer medical information to the health professional and
hospitals who need it?
This week an impressive group of physician and hospital
industry leaders and patient advocates (including California
Medical Association CEO Jack Lewin and National Consumers
League President Linda Golodner) came together in Washington
to launch a new initiative, the Patient Safety Institute (PSI), to
provide an answer to this question of trust. PSI creates a three-
way partnership among patients, doctors, and hospitals that will
provide a voluntary and secure way for patients to transmit
electronically the basic elements of their medical records:
diagnosis, medications, allergies, lab tests, and immunizations.
Doctors seeing a patient who has agreed to use the PSI network
can be reasonably certain that they have at their fingertips the
most important information for proper treatment.
PSI is a non-profit organization governed by a board of directors
drawn equally from national leaders in the patient, physician and
hospital communities. It aims to build a collaborative, voluntary
information network that will improve quality and reduce errors
because it will be governed by those who actually use the
system. It will operate much like the trailblazing VISA credit
card network, in which banks came together to create a way
for consumers to make purchases worldwide through electronic
handshakes, in a system that no one owns but everyone can
access. (Interestingly enough, VISA founder Dee Hock has
been advising PSI as it gets underway.)
Like many Internet services, PSI will be supported by revenue
from making available research on the aggregated, anonymous
data of its users -- though individual data is kept strictly
confidential. To ensure privacy, PSI will use a state-of-the-art
"three-key" security technology. As an added safeguard, it
has also invited representatives of a variety of consumer
advocacy and watchdog groups to serve on its board.
While reducing medical errors is the most important goal of
PSI, it also represents a significant step towards an information-
age health care system. As the Progressive Policy Institute
has argued for a number of years, empowering both providers
and consumers of health care services with complete and
accurate information is in the long run the best way to ensure
affordable, high-quality care.
We strongly encourage federal and state governments to get
involved with PSI, as providers through public hospitals, and
as purchasers of both health care services and data. It offers
a neutral, third-party, secure arbiter that can be trusted with
electronic medical records.