Information is a powerful tool to improve quality. Usually, health care professionals are so embarrassed about reports of poor performance they will make improvements even before the public generally becomes aware of a problem. States have taken a wide variety of approaches to give consumers the right to know. Here are some of the leading initiatives:
Physician Profiles and Malpractice Information. About one-half of the states publish physicians' malpractice records and other information, such as education and certification on the Internet. As one of the first, Massachusetts' physician profile website is extraordinarily popular. It received over seven million hits in its first four years of operation. In the past, physicians groups have staunchly opposed such measures, but more recently, medical societies have sometimes supported physician profiles. An effort to give consumers broader information about the performance of individual doctors and other providers is underway. A coalition of consumers, labor unions, and employers called the Consumer-Purchaser Disclosure Project has established national guidelines for assessing the costs and quality of individual providers. They will encourage health plans and other purchasers to use and issue more assessments in ways that providers will acknowledge are fair and accurate.
Hospital Performance and Safety Information. Hospital-acquired infections afflict about 2 million patients and kill 100,000 patients each year. According the U.S. Centers for Disease Control, hospital-acquired infections add $16,000 to the cost of each hospital patients care and add $27.5 billion annually to US hospital costs. They add about $5 billion a year to health care costs. Twenty-two states require hospitals to report their infection rates to the public, according to Consumers Union, which has spearheaded the reporting campaign, so that hospitals have an additional incentive to lower their infection rates. Six states have issued reports about their hospitals so far with Pennsylvania providing the most comprehensive information about infections occurring in hospitals. In the 2008 Pennsylvania report on infections occurring in 2006 over 30,000 hospital-acquired infections were reported.
Health Care Outcomes Information. As part of the State Children's Health Insurance Program, many states, including Washington, have required health plans to report their health care performance in three areas: early childhood development, children with chronic conditions, and adolescent preventive care. Reporting this data starts a virtuous cycle in which consumers demand and providers deliver higher quality care.
Consumer Rights Information. Giving people the right to challenge health insurance coverage decisions is only helpful if consumers know their rights. For example, Maryland requires HMOs to tell consumers about their right to appeal a decision when such a denial occurs. This rule makes insurers a bit more circumspect in their decisions, knowing that members and policyholders will have immediate information about the recourses open to them.
The United States needs a national strategy to improve health care quality. This effort would ensure that information on medical costs and quality is disclosed and publicized, that providers and insurers are rewarded for their success, and that consumers know and exercise their rights to manage their health care decisions. States will play a key role in empowering patients, and can take reasonable and intermediate steps to get the ball rolling.
Performance Measurement and Reporting, Rhode Island Department of Health
http://www.health.ri.gov/chic/performance/index.php
Massachusetts Board of Registration in Medicine: Physician Profiles
http://profiles.massmedboard.org/
MA-Physician-Profile-Find-Doctor.asp
Florida Department of Health Practitioner Profiling
http://www.doh.state.fl.us/MQA/profiling/index.html
Patient Right to Know Act of 2001, Georgia House Bill 156, 2001
www.legis.state.ga.us/legis/2001_02/sum/hb156.htm
Stop Hospital Infection, Consumers Union
www.stophospitalinfections.org
Leapfrog Group
www.leapfroggroup.org/
Maryland House Bill 59, 2000
mlis.state.md.us/2000rs/billfile/hb0059.htm
National Quality Forum
www.qualityforum.org/
"'Patient Charter' for Physician Performance Measurement, Reporting and Tiering Programs," Consumer-Purchaser Disclosure Project, April 1, 2008
http://healthcaredisclosure.org/activities/charter/
Health Care Choices
www.healthcarechoices.org
"Health Grades Quality Study: Fifth Annual Patient Safety in American Hospitals Study," Health Grades, Inc., April 2008,
http://www.healthgrades.com/media/dms/pdf/
PatientSafetyInAmericanHospitalsStudy2008.pdf
"Estimating Health Care-Associated Infections and Deaths in U.S. Hospitals, 2002," By R. Monina Klevens et al., Public Health Reports, MarchApril 2007
http://www.cdc.gov/ncidod/dhqp/pdf/hicpac/infections_deaths.pdf
"Crossing the Quality Chasm: A New Health System for the 21st Century," Institute of Medicine
http://books.nap.edu/catalog/10027.html
Linda T. Kohn, Janet M. Corrigan, and Molla S. Donaldson, Editors, "To Err Is Human: Building a Safer Health System," Institute of Medicine, 2000
www.nap.edu/catalog/9728.html
Lisa McGiffert
Consumers Union
1300 Guadalupe St, Suite 100
Austin, TX 78701
(512) 477-4431, ext. 115
(512) 477-8934 (fax)
lmcgiffert@consumer.org
David B. Kendall
Senior Fellow for Health Policy
Progressive Policy Institute
4021 Heritage Way
Missoula, MT 59802
(406) 543-2265
dkendall@ppionline.org